I have a non-visible disability. The pain I live with, sometimes severe, means there are some daily things I can’t do, or at least if I did them would make my pain situation worse. However if you met me at the railway station, or anywhere else, then you would have no way of knowing that I have any physical difficulty at all! Pain is completely invisible, and just like emotions I am sure it is felt differently from one person to the next. Pain is also difficult to describe.
Living with pain is a very emotional experience. It is difficult and affects everything about you as a person. Practically you may be finding things difficult too. You may have lost some independence. Living with a person with pain must also be difficult. How can you possibly fully comprehend what is happening with them? I think pain can act as a barrier between people, but it is a barrier that can be easily broken down with communication. If you can help others understand how your condition affects you, including why it is you can do something one day but not the next, then they will be much better placed to help and support you both emotionally and practically.
Click on the pictures to learn more about each strand
1. Embrace the 'new you'
2. Understand pain
3. Understand YOUR pain
4. Know your pain triggers
5. Make plans, set goals
6. Pace yourself
7. Track your progress
8. Improve your sleep
9. Manage health conditions
10. Move and exercise
11. Improve your nutrition
12. Support your mental health
13. Relax and be mindful
14. Do things you enjoy
15. Attend to life stressors
16. Access clinician support
17. Ask for, and accept help
18. Help others understand
19. Review medications
20. Make adaptations, use aids
21. Return to work / education
22. Engage and socialise
23. Volunteer / help others
24. Explore resources